FAQs

What is Being Misdiagnosed about?

Being Misdiagnosed: Stories That Reveal the Hidden Epidemic of Lyme Disease is a collection of twelve true stories from people who spent years searching for answers to unexplained illnesses, only to learn they had Lyme disease. Written by author and advocate Terri McCormick, the book explores how Lyme can mimic conditions like MS, ALS, fibromyalgia, and chronic fatigue syndrome, and offers insight, hope, and direction for those still searching for answers.

Who is Terri McCormick?

Terri McCormick is an author, speaker, educator, and certified Lyme disease specialist. After two of her children were misdiagnosed for years, she dedicated her life to understanding Lyme and helping other families find answers. She serves as an ILADS Ambassador and Illinois State Co-Leader for the Center for Lyme Action and lives in Geneva, Illinois.

Why is Lyme disease called “the great imitator”?

Lyme disease is known as “the great imitator” because its symptoms often resemble those of other conditions, such as multiple sclerosis, autoimmune disorders, psychiatric illnesses, and chronic fatigue. This makes accurate diagnosis difficult, and many patients go years without effective treatment.

Who should read Being Misdiagnosed?

This book is for anyone affected by chronic illness, unexplained symptoms, or years of medical uncertainty. It’s also an essential resource for healthcare providers, patient advocates, educators, and families who want to better understand Lyme disease and the impact of misdiagnosis.

What makes this book different from other Lyme disease books?

Being Misdiagnosed focuses on the human side of illness—the emotional, spiritual, and relational journey that comes with being misunderstood or dismissed. It combines real stories with practical knowledge and reflection, written with compassion and insight from a mother who’s lived it.

Where can I buy the book?

You will soon be able to purchase Being Misdiagnosed directly from this website, through major retailers such as Amazon and Barnes & Noble, or request it at your local bookstore.

Can I buy multiple copies for my group or organization?

Yes. Bulk orders are available for advocacy groups, medical practices, schools, and support networks. Buying multiple copies helps spread awareness and supports those navigating similar challenges. Soon we will have a Bulk Orders page or contact us directly for details.

How can I invite Terri McCormick to speak?

Terri regularly speaks at health and wellness events, advocacy groups, schools, and community gatherings. Her talks blend personal experience with education and practical advice. To invite her, visit Terri’s page or fill out the Contact Form with details about your event.

Is the information in the book medical advice?

No. Being Misdiagnosed is not a substitute for professional medical advice, diagnosis, or treatment. It is meant to educate, raise awareness, and encourage readers to seek qualified care from Lyme-literate medical professionals.

How can I stay updated on new resources or events?

Join the mailing list below to receive updates on Terri’s upcoming appearances, new articles, and Lyme awareness initiatives.